March 2017 I met Vela, my 3-year-old mini-me, who lives on the other side of the world. We were born with the same rare condition and both have blond hair and blue eyes. It’s incredible to meet a cute mini version of myself.
Meeting Josie (10) in Kansas City
Hi all, In my previous blog post I mentioned that I met people with the same condition. The last two months I have met five people while staying in the USA. One of them was Josie, a 10 year old FIL-sister from Iowa.
Traveling around the world to meet people with the same condition
One month ago I shared my story about getting diagnosed after 22 years of searching. At the end of my post I mentioned I’m in a Facebook group with people who have the same condition.
Diagnosed after 22 years of searching
For more than 22 years I have been living with the consequences of a visible tumor in my cheek while I did not even know what I had. And I can tell you, it feels very lonely to be ‘the only one in the world’ with this rare condition and unique appearance. I gave up…
We are engaged!
After 9 years it’s finally official: Koen and I are engaged! Last Thursday Koen went on his knees during our flight to New York. Of course I said yes! I really didn’t expect it at that moment and still hardly can’t believe it!
We’re going to the United States!
Finally, 2018 has started! A year that promises to be exciting with many changes I am looking forward to. Also regarding traveling. We often get asked: ‘and, where will your next trip go to? Do you already have new travel plans?’. After months of preparations I can finally tell you our plans: in 2018 we…
I quit my jobs
Hello all! It has been a while since my latest blog post. Time for a personal update! I have some super exciting news to share. As of January first I quit my jobs to start for myself. Next year I will focus full time on designing crochet patterns and running my blog(s). This is work…
