1 of the 2 special meetings in 2020 was with Virginia. We got in touch via Instagram this summer after she saw my photo with Jaycee. Our meeting got recorded by a camera crew and broadcast on German TV.
Monday January 20th 2020 I got to meet Hailey (2) and her family in New York. Hailey and I were born with the same rare condition and we have the exact same hair color. My parents were able to join which made it extra special.
Meet Jaycee (8) from Nampa, Idaho. She is as happy and sweet as she looks like. Last September I visited Vela and we happened to be in San Diego at the exact same moment. We came together at Vela’s house and had a great bbq together.
I wanted to share something crazy that happened this week. A few hours before I flew back to Europe, I received a message from Mateus (23) who has FIL too! And guess what.. he lives in Sau Paulo! He messaged me at 1pm.. and 5pm we were sitting together at Mc Donald’s!
I don’t know where to start with one of my most bizarre stories ever. Thanks to YouTube’s algorithm I found Janneke (23) who has FIL. And the craziest part? We only live 10 km (6 miles) apart.
Saturday June 16th, 2018, I flew to Madrid to meet Samuel and his family. A special weekend because it was Samuel’s birthday on Sunday! Of course I brought him presents from the Netherlands.
March 2017 I met Vela, my 3-year-old mini-me, who lives on the other side of the world. We were born with the same rare condition and both have blond hair and blue eyes. It’s incredible to meet a cute mini version of myself.
Hi all, In my previous blog post I mentioned that I met people with the same condition. The last two months I have met five people while staying in the USA. One of them was Josie, a 10 year old FIL-sister from Iowa.
One month ago I shared my story about getting diagnosed after 22 years of searching. At the end of my post I mentioned I’m in a Facebook group with people who have the same condition.