Hi, I’m Wilma
I was told I was the only one..
Turns out, I wasn’t!
After a lifetime without answers, I was diagnosed with Facial Infiltrating Lipomatosis at 22. I immediately started looking for others online and found 150+ people worldwide.
Since then, meeting my “extended family” has become my mission.
If you’d like to get in touch, message me on Instagram or Facebook.
Are you a doctor with questions about FIL? Feel free to email me at wilmawestenberg@gmail.com.
Meetings around the world
Since 2018, I’ve travelled to Canada, the USA, Brazil, Turkey, the UK, Germany, Denmark, France, Spain, Italy, and Japan to meet more than 30 people living with Facial Infiltrating Lipomatosis.
In March 2024, I organized the very first international FIL meetup in the Netherlands, followed by a FIL meetup in New York in May 2025.
Videos
If you’re newly diagnosed, hi!
Welcome to the FIL Family
Send me a message.
Your FIL family is excited to meet you.
You’re not alone anymore.
