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Interview on Dutch TV (Je Zal Het Maar Hebben)

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Everyone in the Netherlands knows this program: ‘Je Zal Het Maar Hebben’ which means something like ‘imagine having this’ in Dutch. It’s a popular tv program about (often rare) diseases. They have asked me several times to participate, and this year I finally decided to do it. I am participating in the 21st season.

Why am I participating?

Thanks to my item on a big German tv channel I found 5 new people with FIL. When I got approached again (via Instagram) for this Dutch tv show, I decided to give it a try because I want to find extended family in the Netherlands. People who do not yet have a diagnosis, or a wrong diagnosis.

15 minute item

The first interviews took place in the summer of 2021 and the recordings on Sunday 26 and Monday 27 September 2021. Usually they don’t shoot 2 days right after each other, but because of my and their schedules, this was the best option.

My tv item lasts 15 minutes in total and is divided into 3 blocks: block 1 is about FIL, block 2 about my extended family and block 3 about crochet. For block 2 I invited Janneke (whom I know from this exact same show as she was featured a few years ago) and for block 3 we also went to our dance school to make some cute shots.

You can watch my item here.


I'm Wilma (26) and I was born with a benign tumor in my face. For 22 years I did not know what it was. In 2017 I did a second opinion and got diagnosed with Facial Infiltrating Lipomatosis; an ultra rare condition with only a few people affected world wide. On my blog I share updates about my life and take you with me on my journey to meet extended family around the globe.