One month ago I shared my story about getting diagnosed after 22 years of searching. At the end of my post I mentioned I’m in a Facebook group with people who have the same condition.
Hi there! |
For more than 22 years I have been living with the consequences of a visible tumor in my cheek while I did not even know what I had. And I can tell you, it feels very lonely to be ‘the only one in the world’ with this rare condition and unique appearance. I gave up hope for help years ago, but hoped to get answers to my questions one day. In 2017 I did a second opinion, got diagnosed and was no longer alone.
After 9 years it’s finally official: Koen and I are engaged! Last Thursday Koen went on his knees during our flight to New York. Of course I said yes! I really didn’t expect it at that moment and still hardly can’t believe it!
Finally, 2018 has started! A year that promises to be exciting with many changes I am looking forward to. Also regarding traveling. We often get asked: ‘and, where will your next trip go to? Do you already have new travel plans?’. After months of preparations I can finally tell you our plans: in 2018 we are going to the United States for a few months! We will be leaving in less than two weeks and we will return somewhere in April. A promising start of the new year!