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Wilma and Mateus - unexpected meeting in Sau Paulo - facial infiltrating lipomatosis

A meeting that was meant to be: Mateus from Sao Paulo

Hi all,

I wanted to share something crazy that happened this week. The last two weeks Koen and I have been traveling through Brazil to visit Luisa (4) and her family and meet James Gabriel (11) and his mom. On our last day, Koen and I were driving back to Sao Paulo to meet Luisa one more time before flying back to Amsterdam.

All of a sudden I received a message on Instagram from Mateus. ‘Hi Wilma! My name is Mateus, I’m from Brazil and I have FIL too. I read your blog and I’m happy to know that I’m not the only one’. I couldn’t believe what I just read. The fact that I found someone else with FIL – who is the same age as I am – is already impressive. But guess what.. he lives in Sau Paulo!

I immediately contacted Esther (Luisa’s mom) to share this amazing news. We were all very excited and decided to meet at a mall close to his work.

Meant to be

I received his first message at 1pm… and 5pm we were sitting together at Mc Donald’s, just before I had to leave to the airport! I still can’t believe it and I’m so amazed by this perfect timing.. it’s definitely meant to be! Mateus joined our FIL-group on Facebook and is part of our special FILamily now ❤

Wilma Westenberg and Mateus Fonseca meeting - Facial Infiltrating Lipomatosis FIL

Talking about our lives with FIL

Wilma Westenberg, Luisa and Mateus Fonseca meeting - Facial Infiltrating Lipomatosis FIL

Mateus, Wilma & Luisa

Meeting in Sau Paulo - facial infiltrating lipomatosis

All of us together (and Koen, behind the camera ghehe)

I am Wilma (23) and I was born with a rare tumor in my cheek. For more than 22 years I did not have a diagnosis. Thanks to my website visitors I ended up at the Hecovan working group where I did a second opinion in 2017. Here I got diagnosed with Facial Infiltrating Lipomatosis (FIL); an ultra rare condition with only a few people affected worldwide. On my blog I share updates and take you with me on my travel adventures around the world to meet my 'extended family' with the same condition.

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